Every year begins with a heavy heart. Only time, and time only has helped make this day and the horrible event that we were put through six years ago a little less painful. Still words cannot describe how much I miss my brother and all that was meant to be that will never be..
Love you Samir, always…
Today we are off to a friend’s house to celebrate Swedish Christmas and consume some fabulous Swedish traditional Xmas food! We will continue the celebrations tomorrow with Mike’s family Aussie style! Wishing you all a wonderful Christmas and all the best for 2013!
This blog has mainly been about our little girl Cayla and all the therapy and other appointments for her cerebral palsy but this time the blog post will be about Cayla’s big brother Nathan.
Nathan is 6,5 years old, has lost three teeth, been through Teletubbies, Thomas and friends, Transformers and have now settled on Star Wars! He also enjoys playing with planes, art & craft and loves his Lego! He can sit in his room for hours playing lego whilst listening to our old Tiesto cd’s in the background….! His room was looking a bit bland and boring so we decided to give it a make-over. Out came the toddler stuff such as cute curtains, green shelves and his old bulky chest of draws. A whole box of toys were taken to Salvation Army. The walls were given a much needed wash and lick of fresh white paint plus one feature wall in a warm blue. We painted his old bed from ikea (kura) black and white and ordered a cool star wars wall sticker to go on the wall above the bed. I bought a white bookcase and some black storage boxes from ikea hoping that this would be enough to keep his lego off the floor….! :) Finally we put an old 4×2 bookcase (also Ikea) under his bed and installed white draws and storage boxes to fit more toys, games and puzzles. His room looks awesome and he loves it!
Now I’m busy planning Cayla’s room… and I love searching Pinterest for great ideas!
From Star Wars to Starfish! Nathan and his class in Yr1 has read a book called “The Rainbow Fish” and gave the whole school and parents a great performance at assembly last week! They all had gorgeous, colourful face paintings and dressed in different colors to resemble a range of sea creatures. Nathan was a starfish and dressed
in all red. They were super cute and looked like starfish zombies when walking around on stage! Hillarious!
It is so much better now when Cayla hasn’t got a cast on anymore and she is back playing in the sandpit and doing the dishes which she absolutely love! She is only wearing her new AFOs for about 2 hours a day at the moment so we are using the elektrodress in the morning instead of the afternoon. This works better anyway as we should combine the elektrodress with stretching and/or strengthening activities. We are still trying to come up with the best way of doing physio, speech, elektrodress, AFOs and so on but again, it’s all about a balance. Time in AFOs and time out of them are equally important. We are toilet training at the moment which was rather difficult during the serial casting…! But when she’s on the toilet we are blowing little tissue butterflies from toilet paper to practice her blowing and strengthening her muscles in and around her mouth. Every little helps I suppose!
Dr Michael Proessler, the man in charge of the Elektrodress here in Australia, came to visit us a couple of weeks ago to review Cayla and he was very happy with her progress. After a few minor modifications he left Perth and headed back to Tasmania but he plan to be back here in Perth in June/July sometimes. Next time he will bring the equipment, some information in English and hopefully do a presentation at TCCP. He has already been in contact with a couple of interested parents :)
Today was Cayla’s first day at her prekindy and I had lots of things planned as it is Nathan’s birthday tomorrow! However, things did not turn out that way.. Last night Nathan and Cayla were playing in the couch and had lots of fun until Cayla fell down and smashed her mouth on our coffee table… This resulted in a big fat lip, blood and lots of tears so the first thing I had to do this morning was to make an appointment with a dentist. Her front tooth is a bit loose and the one next to it has moved inwards plus it’s really blue and swollen… The dentist had a look at her but sent us away with a referral to a specialist pediatric dentist whom we are seeing tomorrow afternoon….
As the dentist appointment was just after lunch Cayla only spent the morning at her prekindy Ability Plus but seem to like it which is good. When I went to pick her up I met a girl that I know from TCCP who was there with her son who also has got cerebral palsy.
Before and After Cayla smashed her face in to our coffee table..
This is what Cayla had to say about it on the Vantage Lite:
Anyway, tomorrow is Nathan’s 6th birthday and we have spent the whole afternoon making cupcakes for him to bring to school tomorrow. Both kids ate way too much buttercream icing and was literally bouncing around all evening but they had a lot of fun! Nathan’s birthday party is this weekend and the theme is of course LEGO! :)