No More Botox?

It’s been 8 weeks since Cayla’s Botox injections at PMH. She has since then had about four weeks of serial casting to stretch the muscles in her left leg and foot. Apart from a small pressure sore on her heel she’s done really well and we managed to get about five degrees dorsiflexion. She has got a new pair of AFOs and she picked the same pattern as last year; purple butterflies.
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Earlier in the week we had our post-botox appointment at PMH. This is where we meet with a pediatrician and a physio therapist where they will assess the effects of the Botox injections. I had quite a few questions and wanted to talk to them about Cayla’s laryngospasm that happened during her last GA. You can read about that here. We really don’t want to be worried every time she goes under a general anesthetic which is twice a year for her botox injections.. There was a new pediatrician there that I have never met but apparently she was in the room when Cayla had her last botox so she was aware of the issue re laryngospasm. We spoke about it whilst the physio was checking Cayla’s legs and feet. It was a good chat and the pead pretty much said that they are not overly keen on putting Cayla under a general anesthetic as it is a very high risk that it will happen again They are not 100% sure why but think it has got to do with the lack of saliva control. We talked about possibly doing the injections without a GA but we’re not sure Cayla is old enough yet and I don’t want to freak her out either. So our plan of action is a referral which will be sent to the orthopedic clinic for a specialist to access her in regards to a future surgery. This won’t happen in the next year or even two so no dramas but it will be good to get some more information about our options. Until then we have to control her tight leg muscles with stretching, AFOs, serial casting and Electrodress (Molli). We have so far been using the loose electrodes but will try the outfit when we go to Sweden in a few weeks time. I have no clue how it all will work out but definitely happy to give it a go. The Botox injections have so far definitely been a great help and Cayla is walking better than ever. She is putting much more weight on her left leg and have recently been discharged from the Hip Surveillance Clinic at PMH which is great news! We will also inquire about the WalkAid but that will have to wait until we’re back from Sweden. 12 more days and we’re on the plane!!
A few photos from Nathan’s life in the last few weeks; he’s been invested to Cubs Scouts, received an Honors Certificate, and participated in the school’s yearly cross country carnival. Go Nathan! Also big congratulations to my sis Linda who have just graduated from a Swedish gymnasium. This is a secondary school which prepares the student for higher education at a university – well done Linda!
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Botox and Laryngospasm

Today we went to Princess Margaret Hospital (PMH) for Cayla’s 6-montly botox injections in her left leg. Cayla had to fast from 7am and we had to be at the hospital at 10am in the morning. We didn’t get home until just after 5pm… such a long draining day. As much as I don’t really like the doctors injecting botox into my child’s body we do know that it really helps with the spasticity in her calf and hamstring. We have seen a big  improvement in her walking the last few years and I have been told many times that the small amount of botox injected in her leg is nothing to worry about. Usually Cayla is doing pretty well with the general anesthetic and the recovery but not today.. Apparently she had something called laryngospasm just after she had gone down for the general anesthetic, but before they had put the IV (drip needle) in her hand. That’s when the vocal cords suddenly seize up, blocking the flow of air into the lungs.. They had to give her an injection of a muscle relaxant so they could get tubes down her throat and nose with oxygen! Both doctors came out at different times and spoke to me in the recovery room, ensuring me that Cayla was fine and explained what had happened and why she had a nose bleed an a sore throat… We ended up staying in the recovery room over an hour waiting for the ‘ward nurse’ to come and collect us and take us back to the ward where Cayla’s dad was waiting. Cayla recovered fine and we gave her some panodil for her sore throat. She had some toast and apple juice, and after some more testing and removing the IV we were finally discharged to go home.
Of course I did some more research as soon as I got home and apparently Laryngospasm caused by anesthesia can be particularly deadly for children, leading to cardiac arrest within 30–45 seconds.. I’m not sure what to think but can’t help but feeling a bit uneasy about doing this twice a year with the risk of it happening again.. sucks.. We have a post-botox meeting at PMH in about 6-8 weeks time and I will bring a long list of questions regarding this (to me) scary condition and whether we could try the Botox without a general anesthetic (GA) sometime in the future? I know that older kids are having it done without a GA but not sure if Cayla is too young still. Ok, enough of this, I’m having a glass of red wine and then I’m off to bed.
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Duathlon, Botox & Tooth extraction

We’re in the middle of the Spring school holidays here in Perth and it’s great to chill out with no stress in the mornings and no after school activities. Mike had a day off last week and we took the kids to The Royal Show. It was a glorious sunny day and we spent over six hours there and had a great time! Kids came home very tired but happy with a show-bag each.

I have done my first wedding with Fine-Line Photography for the season and I’m looking forward to many more in the next few months. Unfortunately it started to rain during the outdoor ceremony but the sun came out just in time for the formal photo shoot afterwards. The light was so pretty as the sun came out from behind the clouds shining on the bride and her sparkling white dress in the middle of the green lush vineyard! Magic….

On Sunday morning at 6.15am we all jumped into our car and drove to Champion Lakes in Armadale for Nathan’s first Duathlon! He had to run 500m, cycle 2km and finish off with a 250m sprint to the finishing line where he received his medal! He did so well and we are so proud of him for completing the race and also raising money for Cayla and other kids with Cerebral Palsy! Nathan thought the bike ride was quite nice but that the running was hard work – hahaha! Very funny and I was happy that my bike riding husband heard him say it too. ;) My training is still going well and it’s finally light when I drive to the interval sessions at 5.40am in the morning. I’m currently running about 70km/week including the 30km long slow run on Sunday morning. This will increase in the next couple of months as I start building towards the 6inch trail marathon (46km) in December. Just a tad nervous but have read somewhere that a challenge is not a proper one unless it scares you so there we go..!

Yesterday we took Cayla to Princess Margaret Hospital (PMH) for her 6- monthly Botox injections. This was the first time she had it done at PMH and it has only taken us about 2,5 years to get to the top of the waiting list. As some of you may remember Cayla fell into our coffee table about 18 months ago and knocked one of her front teeth… In the beginning of the year the dentist explained that the tooth had died and needed to be removed :( Not great but nothing we could do so it was decided to take it out at the same time as her botox at PMH so that is what happened yesterday. Botox in her left leg and tooth extraction. All went well and very fast, the staff at PMH are so nice and very experienced. Cayla woke up fine and had some toast and apple juice before we were good to go home. When we came home Cayla vomited all over the floor, had a shower, some panodil, soft pasta for dinner and then bed. The tooth fairy came for a visit and left a $2 coin under Cayla’s pillow. I though that she would look really weird without her tooth but she looks fine and still very cute!

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C2S and WalkAide

It’s been ages I know! I decided to take a little break from the blogging but I know my family in Sweden loves my updates so better get cracking! :)
Since the last post which was my 5km time trial we have been busy with lots of things. The Running Centre organised a great morning for kids to come and learn fun running drills and practise their running technic. Afterwards they put on a sausage sizzle, fruit, balloons and lolly bags! TRC
I am still training six days a week and loving it! The two days of intervals a week has really helped my speed and I managed to pull of a great PB (Personal Best) at City 2 Surf’s Half Marathon a couple of weeks ago. It’s a quite hilly course but I felt really good and ran 21.1km in 1 hour and 50 minutes :DHalfmarathon
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The Centre for Cerebral Palsy gave me a great colourful t-shirt to wear but as I only got it two days before the race I didn’t actually run in it as it may have caused me chaffing.. But it was great to have something clean to put on afterwards!

I have recently bought a new kitchen machine and is making all sorts of creations in the kitchen! Smoothies, soups, almond milk, cinnamon buns, bread, protein balls, healthy chocolate and the list goes on. It’s awesome to be able to make things from scratch and know exactly what goes in, i.e. no nasty additives, food colourings or preservatives.
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The kids are going well. Nathan is learning about Dr Seuss and his children’s book The Lorax which was first published in 1971. Of course we have now seen the movie about 10 times.

Cayla is enjoying her swimming lessons and weekly speech therapy sessions at Kids Are Kids. She is slowly improving and knows almost all sounds now but still finding it difficult to say ‘L’ and ‘T’ but we’ll get there. For being less than three weeks away from her next Botox she is walking so well! She is either putting her left foot flat on the ground or even getting heel strike – hallelujah! Her physio therapist Jodie at Wize Therapy is really happy with her progress so has recently suggested we should try something called WalkAide on Cayla. This is a medical device that’s using electrical stimulation to improve walking for people with foot drop due to Brain or Spinal diseases or Trauma, such as Stroke, Multiple Sclerosis, Spinal Cord Injury, Traumatic Brain Injury, or Cerebral Palsy.
walkaideIt all happened very quickly as we are going private and today Cayla had her first trial/fitting! She didn’t mind the actual device but didn’t really like the sensation of the electrical stimulation. But according to the specialist she was doing really well as some kids cry and won’t even accept wearing the device. The device sits just under  Cayla’s left knee and make her lift her toes up every time she takes a step. Pretty amazing stuff! We decided to do another session after she has had her botox and one set of serial casting to increase her range. This will be a really good starting point for her when/if we go ahead with the actual 2 months trial. It’s expensive but totally worth it! Fingers crossed she will accept it and if she does she won’t need to wear her AFOs anymore, just a small orthotic in her shoes probably. I will keep you posted!
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Botulinum Again

Today has been a long day and I can’t wait to go to bed! We were up at 5am to get ready and take Cayla to the hospital for her 4th Botox injection. Even though the last time we did this was quick and she recovered well from the light general anaesthetic I felt pretty uneasy about the whole thing… The last six months have gone so quick and it’s a little depressing that it’s time for botox again which also means serial casting in about 4 weeks time. I know that it helps Cayla blah blah blah but I guess that sometimes time catches up on you and everything just feels a bit more difficult and  depressing. I feel sorry for Cayla that she has to go through this twice a year plus all the therapy that we have to do. Though she doesn’t seem to mind and thankfully her therapists are really good plus the therapy we do is more play than hard work. IMG_4368We were quite lucky as she was the only person there for botox so we didn’t have to wait around much at all which is great as Cayla had had no food or drink since the night before. This time Dr Whitewood only did her left calf so will see what effect that will have on her posture and gait in a few weeks. She was still asleep when I got to recovery and cried a little as she was waking up and coughed a fair bit. Her lips were dried from the GA and she seemed pretty bothered. I asked the nurse what it could be and apparently the anaesthetist had to give her an injection in her tongue when she came out of the anaesthetic. Not quite sure why to be honest but will find out. It can feel pretty painful so I can understand why Cayla was upset. After about 20 minutes we were rolled back to the room where her daddy was waiting. She had three pieces of toast and some water and we could go home. Even though it was a quick procedure we were away for nearly  five hours and feeling pretty tired now.
IMG_4370 IMG_4371 IMG_4376 IMG_4379 IMG_4382 IMG_4390 IMG_4402 IMG_4394 IMG_4388I sometimes feel like I am not only a mum but also a personal assistant to Cayla, there are just so much to organise all the time and it never stops. Every time I open my inbox, a letter or answer the phone there are more things to attend to! Who has got time to have a full-time job!? In the afternoon her speech therapist rang to talk about her visit to Cayla’s school on Wednesday and the application to the Language development school and so on. Then I check my emails and have an email from her speechy from Kids Are Kids wanting to know a few things. Also received an email from our physio therapist who was asking if anyone was interested to bring their child to a training session with a specialist physio therapist from America on Thursday morning. Of course we want to take Cayla to this as I am keen to find out what they have to say about her gait, AFOs etc. We have recently started to look into a type of non invasive surgery (SPML) that is currently being preformed by only two doctors in America so I am also keen to ask this specialist about that. I will tell you more about this surgery soon I promise.

I rang a close friend this afternoon and found out that her father-in-law had just died in a motorbike accident.. So incredibly sad and I know too well how quickly life can change, just a phone call and your life is turned into living hell… My deepest condolences to the whole family, I am so so sorry for your loss…

Happy New Year!

So it’s nearly the end of 2012 and as everyone else I can’t believe how fast it’s gone by! We have had a great Christmas holiday so far as we have spent most of it in our new swimming pool! It was installed and cleaned just in time for the crazy heat wave we currently have here in Perth with the temperature hovering around 40 degrees!
I have spent the afternoon going through all the appointments/activities that we have had with Cayla this year and will take a moment to reflect and review…

We started year 2012 strong with Wheelie Big Challenge 2011/12 which saw its end in March. WBC is a year-long fundraising challenge where the challengers set a target and try to reach it. We didn’t start Cayla’s challenge until late October last year, about the same time I went public with my blog and it all changed for the better for us that month. With the enormous support from friends and family around the world we reached our target of $1000 within 3 days and had no choice but to increase the target to $2000. In the end we/Cayla raised over $4000 which all went towards the Early Intervention Programme at The Centre for Cerebral Palsy here in Perth. This is where Cayla receive most of her therapy, hydro pool sessions, foot splints, post Botox physio therapy, playgroup and parent focus group etc. All the services are free of charge which explains the importance of fundraising. This year we decided not to fundraise but to concentrate on therapy for Cayla and also getting her ready for kindy next year.

Cayla has had two Botox injections this year and both went really well, the last one in particular as it was so quick and easy. Both times saw her left heel come down on the floor and we have done lots of physio therapy and stretching to improve her posture and gait. She started of with one fixed and one hinged AFO but at the review in February it was decided to change the hinged one to a fixed AFO as she wasn’t quite walking with a heel-toe pattern but was collapsing the midpart of her foot on the right one as well. I was gutted but nothing to worry about really as nothing will stop little Cayla from running, climbing and being as active as usual. The fixed AFO was later changed to a hinged one and even though it didn’t bother me when it was fixed it is really nice to see how much better she is able to move now as it gives her a little bit more flexibility compared to a fixed AFO. She is wearing the AFOs 4-6 hrs/day but it is also very important with time without the them, especially activities such as climbing, playing in the sandpit etc. Cayla is still seeing Megan from TCCP for all her physio therapy as we think she is great :)

Other therapy includes conductive education (CE) which we did in a group environment at Carson st school for a few weeks but now we only do CE one on one in a private practice. CE in Cayla’s case involves a lot of balancing core strength and stretching activities. Similar to what we do with Megan, maybe a bit more forceful but still in a fun way.
Feldenkrais is another type of therapy that we recently started with Cayla which I think is great. It’s a very gentle approach which through touch is loosing up tight parts of Cayla’s body and help her move more freely. We are also using the Inervention Method (elektrodress) 3-4 times a week and that helps with reducing the spasticity in her leg.
The elektrodress is working really great and I can’t wait for the actual outfit to come out on the market soon.
So all of these methods/therapy help Cayla in different ways. The AFOs help with the prolonged stretch and also forcing her to walk the ‘right’ way from a young age. This is important as the ‘toe walking’ will most likely create problems higher up such as knees and hips which may mean surgery later on. Cayla has never had a problem with wearing her footsplints and I am pretty sure she knows that they keep her more balanced and stable, in particular as the Botox is wearing off and her heel comes off the ground making her more unstable on her feet.
The Feldenkrais method works from the other way as it is softening her torso, hip and thigh area creating more opportunities for movement and improved gait.
Physio therapy and Conductive Education both helps with strengthening her body, improve balance and coordination, and maybe most important; helping Cayla doing things as any other kids would do such as kicking, running, jumping, bike riding, putting socks and shoes on and off, getting dressed and so on.

Then we have speech pathology. Cayla is doing speech on a weekly basis both through TCCP and privately closer to our house. Our speechy Avril from TCCP is helping us with activities to do with Cayla and her “talker” (vantage lite) and hopefully it will improve her speech. But what is important to remember is that Cayla understand pretty much everything we say to her, it is her expressive language that is delayed. She is saying more and more words every week but the clarity is not great even though we do understand her most of the time. Just hoping that her friends at school will too after they get to know her!

Cayla’s left hand doesn’t seem to be affected but we still decided that a prekindy run by occupational therapists was the best option. It has basically been a whole day full of OT activities, everything from fine to gross motor skills. Cayla wasn’t toilet trained when she started which wasn’t a problem at all for the lovely staff at Ability Plus. Unfortunately this prekindy has recently closed down which is such a shame but I feel lucky that Cayla had nearly three terms there and learned so many new skills.

On top of all this therapy we have had two Botox injections, eye check-up, hearing test, genetic consultation and testing, hip x-ray, family meeting, lower limb and foot clinic review, serial castings x 8, orthotic reviews, casting for new AFOs, meetings with our pediatrician Dr Langdon, meeting with the neurologist Dr Williams, meetings with staff from Cayla’s school next year and lots of hydro therapy sessions at the centre. I am also doing a sequence of pressure point technics on Cayla’s face every day plus stretching her foot twice a day
As I have recorded everything I can tell you that we have been to more than 150 appointments over the year! That is a lot of driving for sure! Not to forget that we spent nearly 8 weeks in Sweden with no appointments at all..!

Wow, a bit of a long post this time but it’s been great to reflect and review the last 12 months, what has worked and what hasn’t. I look back at this year and I DO feel that we have done as much as we possibly could which makes me really pleased! We are still trying to understand how different therapy works and how it will benefit Cayla right now and for the future. This is important to me as the more I understand the more motivated am I to make time to do it! We are doing a lot of ‘stuff’ every week but if you ask any mum or dad of a child with special needs I am sure their lives are the same more or less. Appointments and therapy becomes a part of your life. Stretching, AFOs and training is what we do every day because we have to. We are not special parents or stronger than anyone else, we just don’t really have a choice. I would do anything to help my kids which I’m sure most people I know would too.
However, I will take the opportunity to give all mums and dads in similar situations, whatever disability, a big hug and a pat on the back! :) I have through this blog been in contact with parents from different parts of the world and I hope that some of the information provided has been helpful in any way. What I write is not scientific and maybe not even 100% accurate all the time..!? But this is our story, our personal journey through the maze of cerebral palsy, PMG and the rest.
A new year is waiting around the corner, hope it will be a great one with lots of love, laughter and good health!

Lots of love
Hanna + family
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Cooling off in the sprinklers at Masters!

Orthotic Solution Review

Seven weeks has passed since Cayla’s Botox and she has had another review regarding her AFOs (footsplints). We managed to get a good stretch with the help of serial casting and her dorsiflexion is at least 5 degrees which means that Cayla will be able to practice putting her heel down first when walking. Instead of putting her foot flat on the floor (like stomping) or so-called ‘toe walking’. During the post botox programme we are strengthening and stretching her calf and hamstring muscles giving her a great opportunity to practicing her heal-toe strikes and therefore improving her gait.

It was decided to make her right AFO hinged (open at the back) and keep her left AFO fixed. We are returning in four weeks to review the effect it has had on her gait and hopefully do a little video as well. It’s good to do a video now and then to see what’s happening with her gait and looking at her knees and hips and so on. I don’t mind if her AFOs are fixed or hinged anymore, whatever Andrew or Gary from Orthotic Solutions decide I will go with. I trust that they know what they are doing and what will be best for Cayla in the long run. We are doing lots of stretching now which includes standing on the wedge and also hand stretches when putting on and taking off her AFOs every day. I have recently started a routine where Cayla is standing on the wedge with the Elektrodress on whilst playing on the Ipad which also helps to improve her speech and comprehension. This means that we are combining lots of different therapy in one hit which is great!


Later on Cayla had a hydro pool session with one of the girls working at the centre whilst I had a coffee and a chat with some other mums at the monthly Parent Focus group meeting. Always nice to see them and receive lots of valuable information and plenty of good advice!
After hydro and parent focus Cayla and I drove to PMH to visit one of Cayla’s little friends Alexey that has recently had a major surgery done to his brain. He was quite weak and a little uncomfortable but perked up when we took him outside to a nearby cafe. The surgery went well and he is back home now. Hopefully he will have a speedy recovery and that his seizures will disappear or at least decrease significantly…

Polymicrogyria (PMG)

We have been to see Dr Simon Williams at Princess Margaret Hospital (PMH). He is one of the neurologists at PMH and I have only heard very positive things about
him so it was very exciting to finally meet him. I don’t actually know why we had an appointment with him but suspect that our pediatrician Dr Kate Langdon had organised it quite some time ago? I thought we would have met him last year for Cayla’s epilepsy test but he wasn’t there to do the test. This man seems to be quite busy and difficult to get an appointment with so we definitely didn’t want to miss this opportunity and it turned out to be a great and very informative meeting.
We mainly talked about PMG which means polymicrogyria. This is the name for the small extra folds that Cayla has on her brain which are also causing her cerebral palsy. It’s a rare neuronal migration disorder in which neurons fail to migrate normally up into the brain from where they are born resulting in structurally abnormal cerebral hemispheres. The name Polymicrogyria broken down describes its characteristics: Poly (many) micro (small) gyria (folds) in the surface of the brain. Dr Williams described it like 6-layers of scaffolding in which each cell had to go through the different levels to create its own layer. Layer 2 has to go through layer 1 to find its place and layer 3 has to go through layer 1 and 2 to the right place and so on. This is a process that happens when the surface of the brain developes in the 2nd trimester and it doesn’t need much at all to disturbed this delicate process. In most cases the cause of the condition is unknown but it can be due to certain infections or a lack of oxygen to the fetus.
Researchers are investigating the genetic causes of polymicrogyria and we have recently sent of a blood test to the Genetic Lab in Rockingham to find out what could have caused the PMG in Cayla’s case. When an individual is the only affected person in the family, it can be difficult to determine the cause and not that it matters that much to us anyway. However, it will be valuable to know whether Cayla will be able to pass this on to her children in the future. This test takes up to 6 months so will let you know more about that as soon as we have the results back.

Dr Williams also said that because her cerebral palsy is caused by PMG and
that our brains are so complex it might actually get better in the future. A brain can
create new neurological pathways and often finds other ways to make up for the damaged part so who really knows what our brains are fully capable of doing and restoring. I don’t hold my hopes up that Cayla’s spasticity in her leg is going to disappear in the future but that would of course be fantastic.
Though if Cayla’s PMG didn’t also cause spasticity in her leg she wouldn’t have had an MRI or a diagnose so early on. She would be a child with speech delay/difficulty and we would have to pay to take her to private speech pathology sessions and for equipment such as the Vantage Lite, Ipad and so on. She probably wouldn’t be able to go to a mainstream school as she wouldn’t be entitled to have an Education Assistant (EA). All of these things are available to us (free of charge) as Cayla has a diagnose of cerebral palsy.

Dr Williams wasn’t particularly worried about her speech and that both speech and saliva control will definitely improve with training and increased awareness as she gets older. He thought that she looks like a very happy 3-year old presenting age appropriate behaviour without doing a thorough assessment. Therefore no need to see him on a regular basis but we will more than likely see him when Cayla gets further up on the list for Botox at PMH which should happen very soon.

Botox – 3rd time

It’s been over six months since Cayla’s last Botox injection and she is walking more and more up on her toes again. Botox has been very successful for Cayla as she didn’t walk until her first injection of Botox last year in July. I have to admit that I wasn’t overly keen on Botox when I first heard of it but have since then found out a lot more information about it so we now feel comfortable going through with the procedure. But of course I’m hoping that we can avoid these injections (and any operations) in the future with the help of the Elektrodress and lots of stretching and strengthening exercises.

We arrived at the hospital at 7am in the morning and had to wait quite a while before Cayla was admitted. Cayla is not the youngest child having Botox anymore and since they have all been fasting from the evening before it’s more important to get the littlest ones in first. Anyway, Cayla was number four on the list and everything went really well
this time which was great. Cayla fell asleep fine and it took no more than 25 minutes before I was called to the recovery room. I was expecting Cayla to be a bit sad and disoriented but no, she was happily chatting to the nurses and was ready for an icy pole. After a little while she was allowed back to the room to had a bit of toast and yoghurt to eat. Then the nurse checked her heart rate and removed the needle from her arm, we got her dressed and went home. Very quick and easy. This time she was also given a small amount of Botox in her right calf as she has a so-called ‘catch’ in that leg/foot too. This was recommended by a highly regarded doctor called Dr Michael Chan a couple of months ago. He runs the Lower Limb and Foot Clinic and has worked at TCCP for a long time. It will be interesting to see what effect that will have.
Below are some photos from our morning at SJOG hospital and little Cayla is happy and running back to our car after the procedure :)

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The effects of Botox are peaking about 4-6 weeks after the injection and that is when the very important Post Botox Programme will kick in. This programme involves a lot of stretching and strengthening exercises, hence the importance of bike riding and squatting etc. We have recently taught Cayla to walk with a ‘heal-toe’ pattern with her right foot and hopefully we can teach her to do the same with her left foot as well. We will probably also have some serial casting done in a few weeks. It is important to get at least a 5% range for her to even be able to walk in a ‘normal’ way and serial casting is a very effective and cheap way of getting that prolonged stretch. So even though I’m not a big fan off casting it has to be done plus that it really doesn’t bother Cayla at all, only me…

On our way home - I love this little girl so much!

On our way home – I love this little girl so much!

In the afternoon we went to see Nathan’s class Edu Dance Performance at school, they were super cute!

Botox – Article

An article about new equipment to help doctors at Princess Margaret Hospital (PMH) to more accurately target the ‘right’ muscles when giving Botox to young children.
Cayla is due for Botox next week but since this is her 3rd time we don’t feel very nervous. We have, in her case, seen the benefits and together with the post Botox programme we follow (serial casting, stretching, strengthening exercises, AFOs) it does wonders for her posture and gait pattern. With the help of some more Government funding Cayla should soon be getting her Botox injections through PMH instead of going private.