Botox and Laryngospasm

Today we went to Princess Margaret Hospital (PMH) for Cayla’s 6-montly botox injections in her left leg. Cayla had to fast from 7am and we had to be at the hospital at 10am in the morning. We didn’t get home until just after 5pm… such a long draining day. As much as I don’t really like the doctors injecting botox into my child’s body we do know that it really helps with the spasticity in her calf and hamstring. We have seen a big  improvement in her walking the last few years and I have been told many times that the small amount of botox injected in her leg is nothing to worry about. Usually Cayla is doing pretty well with the general anesthetic and the recovery but not today.. Apparently she had something called laryngospasm just after she had gone down for the general anesthetic, but before they had put the IV (drip needle) in her hand. That’s when the vocal cords suddenly seize up, blocking the flow of air into the lungs.. They had to give her an injection of a muscle relaxant so they could get tubes down her throat and nose with oxygen! Both doctors came out at different times and spoke to me in the recovery room, ensuring me that Cayla was fine and explained what had happened and why she had a nose bleed an a sore throat… We ended up staying in the recovery room over an hour waiting for the ‘ward nurse’ to come and collect us and take us back to the ward where Cayla’s dad was waiting. Cayla recovered fine and we gave her some panodil for her sore throat. She had some toast and apple juice, and after some more testing and removing the IV we were finally discharged to go home.
Of course I did some more research as soon as I got home and apparently Laryngospasm caused by anesthesia can be particularly deadly for children, leading to cardiac arrest within 30–45 seconds.. I’m not sure what to think but can’t help but feeling a bit uneasy about doing this twice a year with the risk of it happening again.. sucks.. We have a post-botox meeting at PMH in about 6-8 weeks time and I will bring a long list of questions regarding this (to me) scary condition and whether we could try the Botox without a general anesthetic (GA) sometime in the future? I know that older kids are having it done without a GA but not sure if Cayla is too young still. Ok, enough of this, I’m having a glass of red wine and then I’m off to bed.
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One thought on “Botox and Laryngospasm

  1. Ni är fantastiska fantastiska hela familjen och fina duktiga Cayla! Fint och bra skrivet som vanligt. Ska bli intressant att höra vad de säger sen på uppföljningsmötet. Skål baby. E, xo

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