Cayla’s physio Megan has given us a home plan with activities that will make Cayla put more weight on her left foot. We are doing lots of playing while standing on the ‘wobble board’ which is a great piece of equipment that the centre has lent us. Standing on the wedge and walking on big bubble wrap is also fun but only for a very short time. I try to do these activities and stretches when she has the elektrodress on as that is when her usually tense calf muscles are more relaxed and she is also more flexible.
Lower limb and foot clinic:
Cayla has been to TCCP for an appointment with Dr Michael Chan at the Lower limb and foot clinic to review her orthontic needs. We have only been to this clinic once before and that was in May last year before Cayla had her Botox injection and before she was given her AFOs.
Dr Chan said that she is still quite stiff in her left calf and he also think she is a little bit stiff in her right foot/leg. He would like her to get Botox in both legs but only a small amount in the right one. When the Botox peaks which is about 3-4 weeks after the injection we will review whether she’ll need some serial casting done and this time on both feet. I am gutted that she might need casting on not only one foot but both this time…! However it will only be a very thin cast and probably for a short 2 weeks or so but we’ll see. It’s a bit like having a baby, as soon as you think you know your schedule it’s time to change it!
Cayla is booked in to do Botox at the end of this month. New splints will be ordered a couple of weeks after that as she has nearly outgrown the once she currently using. If the range is alright on the right food (about 5-10%) they will remove the upper part of the splint/AFO (the right one is on hinges) and only keep the part that goes under her foot inside her shoe. She will still need a fixed AFO on her left leg/foot.
Apperently Cayla’s left heel bone is not growing as much as her right one, this is due to the lack of pressure a ‘normal’ foot gets when we are walking a ‘heel – toe pattern’ and so on. Cayla is not putting her whole foot flat on the floor as her brain is sending wacky signals to her calf making it constantly ‘work’. To encourage her left heel bone to grow we are going to tap her heal with our hands as often as we can and as much as she will allow us. Just another thing to add to our schedule… Feeling bummed… Just over it.. would love to just ‘fix the problem’ but I can’t…. We just have to do our best to make sure Cayla is developing as she is meant to with the aid of AFOs, Botox, Elektrodress, Serial Casting, Stretching, physio therapy, ‘tapping on her heal’ and the rest… I guess that I would like to see more effect of the elektrodress but I know that it may take some time. Rome wasn’t built in a day and neither will muscles or change of walking habits. Sometimes I am just over all of this crap to be honest but have no other choice but to keep going. Wish everything was just as normal…. Enough moaning, I’m sick today, got ‘whatever’ the kids had last week :(
On a better note and one less thing to worry about – Cayla’s results for epilepsy came back normal – YAY!